Thursday, October 27, 2016

Slides from the first Plenary Session of NACFC 2016. A Cure for All:Leaving No One Behind

The CFF has already produced a wonderful blog that detailing the first Plenary session. Thank you Katherine Tuggle! Here are the slides that correspond with her narrative. Enjoy <3


  1. Keep 'em coming! Specifically would love it CFF is trying to create a process with FDA for rare mutations to try existing meds as they come along until het/hetmin are treated. Need N-1 or some type of in vitro to N-1 process. Today's drugs can be helping more people. And, because today's drugs are $$$$ nobody can afford to try them off label. CFF doesn't like to touch this but it's real and true and can help people today, not in 4-5 years. Help?

  2. nice this blog.
    You put really very helpful information. Keep it up. Keep blogging. I’m looking to reading your next post.